Qualitative study on family support care needs of very low birth weight infant parents based on timing it right theory
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摘要:
目的 了解极超低出生体重儿父母的家庭支持护理需求对极超低出生体重儿的康复和成长有重要意义,本研究基于时机理论开展NICU极超低出生体重儿父母不同阶段的家庭支持护理需求分析,了解极超低出生体重儿的家庭支持护理需求现状,为构建极超低出生体重儿家庭支持护理方案提供参考依据。 方法 基于时机理论,将极超低出生体重儿的病程分为NICU住院期、出院过渡期及出院居家期3个不同时期;采用现象学研究方法,于2021年10月—2022年4月,选取安徽医科大学第一附属医院新生儿科住院治疗的3个不同时期的极超低出生体重儿父母为研究对象,对其进行半结构式访谈,最终访谈极超低出生体重儿父亲/母亲共42名。应用Colaizzi现象学研究法对访谈资料进行整理和分析。 结果 结合时机理论的不同时期提炼主题,可归纳出3个主题,(1)NICU住院期:担心,需要更多信息支持;(2)出院过渡期:紧张,希望提供技术支持;(3)出院居家期:从容,希望获取出院支持。 结论 NICU极超低出生体重儿父母家庭支持护理需求是一个复杂、动态的过程,极超低出生体重儿处于不同的病程阶段,其父母家庭支持护理需求也会随之变化,医护人员应根据其不同阶段的需求,给予专业性和针对性的指导及帮助,以提高极超低出生体重儿父母的育儿信心和育儿能力,促进极超低出生体重儿的健康成长。 Abstract:Objective Recognizing the significance of parental family support in promoting the recovery and development of very low birth weight infants, this study applies the timing it right theory to analyze the nursing needs for family support among parents of very low birth weight infants at different stages in NICU. The aim is to gain insights into the current status of family support requirements for these infants and provide valuable guidance for developing effective family support nursing programs. Methods Based on timing it right theory, the disease course of very low birth weight infants was divided into three periods: NICU hospitalization period, discharge transition period and discharge home period. Using the phenomenological research method, the parents of very low birth weight Infants in three different periods who were hospitalized in the neonatal department of the First Affiliated Hospital of Anhui Medical University parents of very low birth weight infants in these three different periods were selected as research objects from October 2021 to April 2022, and semi-structured interviews were conducted on them. A total of 42 fathers/mothers of very low birth weight infants were finally interviewed. Colaizzi phenomenological method was used to sort out and analyze the interview data. Results Combining different periods of timing it right theory to extract themes, three themes can be summarized: (1) NICU hospitalization, feeling worried and in need of more information support; (2) Discharge transition, feeling nervous and hoping for technical support; (3) Discharge home period, feeling calm and hoping to obtain discharge support. Conclusion Providing supportive care for parents of very low birth weight infant in NICU is a complex and dynamic process. As premature babies progress through different stages of their illness, the support needs of their family also change. Medical professionals should provide professional and specific guidance and assistance based on these changing demands to enhance the parenting confidence and ability of parents with very low birth weight infants, thereby promoting healthy growth. -
Key words:
- Timing it right theory /
- Very low birth weight infant /
- Infant /
- Family support care
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表 1 极超低出生体重儿及其父母基本情况
Table 1. Overview of very low birth weight infants and their parents
项目 类别 例数(%) 早产儿 胎龄(周) <32 32(76.2) 32~37 10(23.8) 出生体重(g) <1 000 13(31.0) 1 000~1 499 29(69.0) 住院时间(d) <30 5(11.9) 30~60 32(76.2) >60 5(11.9) 分娩方式 自然分娩 9(21.4) 剖宫产 33(78.6) 父母 性别 男性 23(54.8) 女性 19(45.2) 年龄(岁) 20~30 21(50.0) 31~40 21(50.0) 文化程度 高中及以下 22(52.4) 专科 9(21.4) 本科及以上 11(26.2) 居住地 农村 19(45.2) 城镇 9(21.4) 城市 14(33.4) 家庭月收入水平(元) 5 000~7 999 8(19.0) 8 000~9 999 20(47.6) 10 000~15 000 14(33.4) 家庭结构 核心家庭 18(42.9) 主干家庭 24(57.1) -
[1] 沈瑜, 顾春怡, 俞春兰, 等. 家庭参与式一体化照护对早产儿生长发育及家庭照护能力的影响[J]. 护理学杂志, 2024, 39(4): 41-45.SHEN Y, GU C Y, YU C L, et al. Effects of Family Integrated Care Model(FICare)on growth of premature infants and family care ability[J]. Journal of Nursing Science, 2024, 39(4): 41-45. [2] 李萌, 张玲玲. NICU护士对早产儿家庭支持服务的认知与临床实践的现状调查[J]. 医学理论与实践, 2021, 34(1): 152-155.LI M, ZHANG L L. Investigation on cognition and clinical practice of family support service for premature infants by NICU nurses[J]. The Journal of Medical Theory and Practice, 2021, 34(1): 152-155. [3] 张成虎, 杨军, 李晓岚. 时机理论的教育干预对抑郁患儿康复效果和家长应对方式的影响[J]. 中国健康心理学杂志, 2023, 31(7): 1000-1005.ZHANG C H, YANG J, LI X L. Influence of educational intervention of timing theory on the recovery effect of children with depression and coping style of parents[J]. China Journal of Health Psychology, 2023, 31(7): 1000-1005. [4] 韩倩. 基于时机理论的关怀护理在妊娠期糖尿病孕妇中的应用[J]. 保健医学研究与实践, 2022, 19(11): 118-121.HAN Q. Application of timing theory-based care in pregnant women with gestational diabetes mellitus[J]. Health Medicine Research and Practice, 2022, 19(11): 118-121. [5] KING J, O'NEILL B, RAMSAY P, et al. Identifying patients' support needs following critical illness: a scoping review of the qualitative literature[J]. Crit Care, 2019, 23(1): 187. DOI: 10.1186/s13054-019-2441-6. [6] 郑爱娣, 王咏梅, 徐静, 等. 基于时机理论的延续护理在房颤合并慢性心力衰竭患者中的应用[J]. 中华全科医学, 2022, 20(7): 1259-1262. doi: 10.16766/j.cnki.issn.1674-4152.002572ZHENG A D, WANG Y M, XU J, et al. Application of continuous nursing based on timing theory in patients with atrial fibrillation and chronic heart failure[J]. Chinese Journal of General Practice, 2022, 20(7): 1259-1262. doi: 10.16766/j.cnki.issn.1674-4152.002572 [7] 薛佳丽, 芦鸿雁, 余芳, 等. 老年慢性阻塞性肺疾病患者疲劳感知与应对体验的质性研究[J]. 中华全科医学, 2023, 21(5): 792-796. doi: 10.16766/j.cnki.issn.1674-4152.002985XUE J L, LU H Y, YU F, et al. Perceived fatigue and coping experience in elderly patients with chronic obstructive pulmonary disease: A qualitative study[J]. Chinese Journal of General Practice, 2023, 21(5): 792-796. doi: 10.16766/j.cnki.issn.1674-4152.002985 [8] 廖晨霞, 李伦兰, 刘静, 等. 基于时机理论脊髓损伤患者主要照顾者照护体验的质性研究[J]. 解放军护理杂志, 2020, 37(2): 52-55.LIAO C X, LI L L, LIU J, et al. The Care Experience of Main Caregivers of Patients with Spinal Cord Injury Based on Timing Theory: A Qualitative Study[J]. Nursing Journal of Chinese People' s Liberation Army, 2020, 37(2): 52-55. [9] 田园, 陈津津, 于广军, 等. NICU出院高危儿0~3岁生长发育随访管理技术的专家共识[J]. 中国儿童保健杂志, 2021, 29(8): 809-814.TIAN Y, CHEN J J, YU G J, et al. Expert consensus on the follow-up management technologies of growth and development from 0 to 3 years old in high-risk infants discharged from neonatal intensive care unit[J]. Chinese Journal of Child Health Care, 2021, 29(8): 809-814. [10] 邢珊, 杨子久, 李明超. 超低出生体重儿脑白质损伤的危险因素分析[J]. 医药论坛杂志, 2022, 43(22): 50-53.XING S, YANG Z J, LI M C. Analysis of risk factors of white matter damage in extremely low birth weight infants[J]. Journal of Medical Forum, 2022, 43(22): 50-53. [11] 项旦丹, 曹雪宏, 余海英, 等. 早产儿母亲育儿支持现状及影响因素分析[J]. 中华全科医学, 2023, 21(8): 1347-1350. doi: 10.16766/j.cnki.issn.1674-4152.003120XIANG D D, CAO X H, YU H Y, et al. Analysis of status quo and influencing factors of parental support of premature mothers[J]. Chinese Journal of General Practice, 2023, 21(8): 1347-1350. doi: 10.16766/j.cnki.issn.1674-4152.003120 [12] 谢菊萍, 张艺媛, 李月梅, 等. 早产儿父母照护能力现状调查及影响因素分析[J]. 护理实践与研究, 2023, 20(18): 2703-2706.XIE J P, ZHANG Y Y, LI Y M, et al. Investigation on the current situation of care ability of parents of premature infants and analysis of infl uencing factors[J]. Nursing Practice and Research, 2023, 20(18): 2703-2706. [13] 曾晓艳, 莫蔚农, 孔云伟, 等. 多种油脂肪乳肠外营养对极低出生体重儿的影响[J]. 浙江临床医学, 2022, 24(4): 602-604.ZENG X Y, MO W N, KONG Y W, et al. Effect of parenteral nutrition on very low birth weight infants[J]. Zhejiang Clinical Medical Journal, 2022, 24(4): 602-604. [14] 成彩丽, 戴露, 佘娟. 早期母乳微量喂养对极低出生体重儿生长发育及肠道功能的影响[J]. 中国临床医生杂志, 2021, 49(11): 1372-1375.CHENG C L, DAI L, SHE J. Effects of early breast milk microfeeding on growth, development and intestinal function of very low birth weight infants[J]. Chinese Journal For Clinicians, 2021, 49(11): 1372-1375. [15] 吕丽敏, 高玲珊, 许丽旋. 出院前过渡病房的建立在极/超低出生体重儿中的应用效果[J]. 黑龙江中医药, 2020, 49(6): 282-283.LYU L M, GAO L S, XU L X. The effect of establishing transitional ward before discharge in extremely/ultra-low birth weight infants[J]. Heilongjiang Journal of Traditional Chinese Medicine, 2020, 49(6): 282-283. [16] 周毅先, 林燕, 姚香莉, 等. 基于Delphi法的早产儿过渡期家庭参与式护理方案的构建及KANO评价[J]. 护理管理杂志, 2019, 19(1): 21-25.ZHOU Y X, LIN Y, YAO X L, et al. The construction and KANO evaluation that based on Delphi method of family participatory nursing scheme for premature infants in transitional period[J]. Journal of Nursing Administration, 2019, 19(1): 21-25. [17] 王燕, 崔慧敏, 李胜玲, 等. NICU早产儿母亲疾病不确定感与早产儿延续护理需求的相关性分析[J]. 中西医结合护理(中英文), 2019, 5(1): 1-4.WANG Y, CUI H M, LI S L, et al. Correlation between uncertainty in illness of mothers and continuing care needs of premature infants in NICU[J]. Journal of Clinical Nursing in Practice, 2019, 5(1): 1-4. [18] 吴金花, 倪志红, 郭宏卿, 等. 家庭支持干预改善早产儿家庭功能的效果研究[J]. 中国护理管理, 2023, 23(8): 1163-1169.WU J H, NI Z H, GUO H Q, et al. Effect of family support intervention on improving family function of premature infants[J]. Chinese Nursing Management, 2023, 23(8): 1163-1169. [19] 傅亚丽, 张先红, 李禄全, 等. 早产儿住院期间家庭参与式护理方案的构建[J]. 中国护理管理, 2022, 22(8): 1170-1175.FU Y L, ZHANG X H, LI L Q, et al. Development of a Family-Integrated Care program for premature infants during hospitalization[J]. Chinese Nursing Management, 2022, 22(8): 1170-1175.
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