Investigation on the status quo of health literacy and health education needs of caregivers of patients with dysphagia after new stroke before discharge
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摘要:
目的 调查新发脑卒中后吞咽障碍(PSD)患者照顾者出院前健康素养现状和健康教育需求,并分析相关影响因素。 方法 采用便利抽样法,选取2023年2月—2024年8月浙江省人民医院淳安分院收治的105例PSD患者及其照顾者。采用一般资料量表、健康素养量表、健康教育需求量表对PSD患者照顾者进行问卷调查,通过多重线性回归分析PSD患者照顾者健康素养及健康教育需求的影响因素。 结果 共发放调查问卷105份,最终收回有效问卷98份(93.33%)。98例PSD患者照顾者的健康素养量表总分为(48.75±9.20)分,健康教育需求量表总分为(204.16±10.36)分。不同年龄、文化水平、工作状态及与患者关系之间的PSD患者照顾者健康素养量表得分比较,差异有统计学意义(P < 0.05);不同文化水平、患者带胃管与否、患者每日进餐频次及住院时间之间的PSD患者照顾者健康教育需求量表得分比较,差异有统计学意义(P < 0.05)。多重线性回归分析显示:年龄、文化水平及工作状态是PSD患者照顾者健康素养的影响因素(P < 0.05),患者带胃管与否、患者每日进餐频次及患者住院时间均为PSD患者照顾者健康教育需求的影响因素(P < 0.05)。 结论 新发PSD患者照顾者出院前的健康素养处于中下等水平,年龄、文化水平及工作状态是相关影响因素;健康教育需求处于高等水平,患者带胃管与否、患者每日进餐频次及患者住院时间是相关的影响因素。 Abstract:Objective To investigate the status quo of health literacy and health education needs of caregivers of patients with dysphagia (PSD) after a new stroke before discharge, and analyze the related influencing factors. Methods A total of 105 PSD patients and their caregivers admitted to Chun ' an Branch of Zhejiang Provincial People ' s Hospital from February 2023 to August 2024 were selected by convenient sampling method. The general data scale, health literacy scale, and health education demand scale were selected to conduct a questionnaire survey on caregivers of PSD patients, and the influencing factors of health literacy and health education demand of caregivers of PSD patients were analyzed by multiple linear regression. Results A total of 105 questionnaires were distributed and 98 valid questionnaires were finally recovered (93.33%). The total score of the health literacy scale for caregivers of 98 PSD patients was (48.75±9.20) points, and the total score of the health education demand scale for caregivers was (204.16±10.36) points. The scores of caregivers of PSD patients with different ages, education levels, working status, and relationships with patients were compared, and the difference was statistically significant (P 0.05). There were significant differences in the scores of PSD caregivers ' health education demand scale among different educational levels, patients with or without gastric tubes, patients ' daily meal frequency, and hospitalization time (P < 0.05). Multiple linear regression analysis showed that age, education level, and working status were the influencing factors of health literacy of caregivers of PSD patients (P < 0.05), and whether patients wore gastric tubes, daily meal frequency and hospitalization time were the influencing factors of health education needs of caregivers of PSD patients (P < 0.05). Conclusion The health literacy of caregivers of newly diagnosed PSD patients before discharge is in the lower-middle level, and age, educational level, and working status are related factors. The demand for health education is at a high level, and whether the patient has a gastric tube, the daily meal frequency of the patient, and the hospitalization time of the patient are related factors. -
Key words:
- Stroke /
- Dysphagia /
- Caregiver /
- Health literacy /
- Health education
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表 1 98例PSD患者照顾者健康素养量表得分情况
Table 1. Scores of health literacy scale for caregivers of 98 PSD patients
项目 分值(分) 得分(x ±s,分) 得分率(%) 排序 基本技能 5~25 10.22±3.17 40.88 3 基本知识与理念 6~30 17.36±3.54 57.87 1 健康生活方式与行为 9~45 21.17±2.49 47.04 2 总分 20~100 48.75±9.20 48.75 表 2 98例PSD患者照顾者健康教育需求量表得分情况
Table 2. Scores of health education demand scale for caregivers of 98 PSD patients
项目 分值(分) 得分(x ±s,分) 得分率(%) 排序 吞咽障碍知识 5~25 20.70±1.38 82.80 3 管饲知识 17~85 65.26±4.83 76.78 5 吞咽训练方法 5~25 21.03±1.96 84.12 2 经口进食知识 13~65 59.16±2.54 91.02 1 营养知识 5~25 19.22±1.02 76.88 4 并发症护理 5~25 19.19±1.14 76.76 6 总分 50~250 204.16±10.36 81.60 表 3 PSD患者照顾者健康素养及健康教育需求的单因素分析(x ±s,分)
Table 3. Univariate analysis of health literacy and health education needs for caregivers of PSD patients (x ±s, points)
项目 例数 健康素养 健康教育需求 量表得分 统计量 P值 量表得分 统计量 P值 年龄(岁) 9.814a < 0.001 0.169a 0.845 <45 24 43.26±8.39 203.12±12.57 45~59 57 52.18±9.04 204.35±12.38 ≥60 17 46.15±8.25 205.38±12.95 性别 0.619b 0.538 0.783b 0.435 男性 46 47.89±8.95 203.59±12.18 女性 52 49.02±9.11 205.58±12.96 文化水平 4.280a 0.017 3.250a 0.043 小学及以下 12 44.45±8.42 209.36±12.84 初高中 45 47.88±8.74 205.14±12.52 专科及以上 41 52.05±9.26 200.19±11.87 工作状态 3.735b < 0.001 0.568b 0.571 在职 43 47.28±8.79 205.16±12.42 退休/离职 55 54.16±9.37 203.74±12.08 患者卒中类型 0.518b 0.606 0.220b 0.826 脑出血 56 48.10±9.18 204.57±12.48 脑梗死 42 49.08±9.34 204.03±11.67 患者带胃管 0.475b 0.636 3.220b 0.002 是 61 48.22±9.20 201.18±12.14 否 37 49.14±9.35 209.57±13.08 患者医保类型 0.581a 0.561 0.448a 0.640 职工 29 51.23±9.29 202.36±12.47 新农合/社保 55 50.33±9.14 204.05±12.32 自费 14 48.02±9.07 206.12±12.91 患者每日进餐频次(次) 0.161a 0.852 3.941a 0.023 <3 10 49.26±9.31 210.15±13.04 3~5 73 48.71±9.24 204.15±12.28 >5 11 50.38±9.47 195.34±12.08 住院时间(d) 0.178a 0.837 4.141a 0.019 <7 41 48.85±9.17 207.84±13.27 7~14 18 49.22±9.28 203.46±13.05 >14 39 50.07±9.30 199.78±11.46 与患者关系 4.388a 0.015 0.876a 0.420 夫妻 56 54.07±9.33 207.09±13.14 父母或子女 24 49.21±9.17 205.11±12.75 其他 14 47.16±9.05 202.13±12.34 注:a为F值,b为t值。 表 4 PSD患者照顾者健康素养及健康教育需求的多重线性回归分析
Table 4. Multiple linear regression analysis of health literacy and health education needs for caregivers of PSD patients
变量 β SE β' t值 P值 健康素养量表得分 年龄 5.416 1.628 0.381 3.327 0.001 文化水平 8.511 2.170 0.706 3.922 < 0.001 工作状态 5.255 2.014 0.285 3.327 0.011 与患者关系 -2.099 2.455 -0.167 -0.855 0.395 健康教育需求量表得分 文化水平 4.593 5.082 0.185 0.904 0.368 患者带胃管与否 14.403 5.234 0.339 2.752 0.007 患者每日进餐频次 16.302 5.006 0.570 3.257 0.002 患者住院时间 20.238 3.798 0.813 5.328 < 0.001 -
[1] BANDA K J, CHU H, KANG X L, et al. Prevalence of dysphagia and risk of pneumonia and mortality in acute stroke patients: a meta-analysis[J]. BMC Geriatr, 2022, 22(1): 420. doi: 10.1186/s12877-022-02960-5 [2] DZIEWAS R, MICHOU E, TRAPL-GRUNDSCHOBER M, et al. European Stroke Organisation and European Society for Swallowing Disorders guideline for the diagnosis and treatment of post-stroke dysphagia[J]. Eur Stroke J, 2021, 6(3): LXXXIX-CXV. DOI: 10.1177/23969873211039721. [3] 杨珊珊. 280例急性缺血性脑卒中住院患者吞咽障碍的变化特点及预后分析[D]. 广州: 暨南大学, 2019.YANG S S. Changes and prognosis of dysphagia in 280 inpatients with acute ischemic stroke[D]. Guangzhou: Jinan University, 2019. [4] 章汝, 章小华, 傅国萍, 等. 自我效能理论主导的靶向训练对脑卒中患者运动功能及日常生活能力的影响[J]. 中华全科医学, 2024, 22(5): 805-808, 832. doi: 10.16766/j.cnki.issn.1674-4152.003507ZHANG R, ZHANG X H, FU G P, et al. Effect of targeted training led by self-efficacy theory on motor function and daily living ability of stroke patients[J]. Chinese Journal of General Practice, 2024, 22(5): 805-808, 832. doi: 10.16766/j.cnki.issn.1674-4152.003507 [5] 缪月卿, 冯琳茜, 袁彬彬, 等. 脑卒中患者健康素养与健康管理行为及自我效能的关系研究[J]. 临床护理杂志, 2022, 21(6): 2-5.MIAO Y Q, FENG L Q, YUAN B B, et al. Study on the relationship between health literacy, health management behavior and self-efficacy of stroke patients[J]. Journal of Clinical Nursing, 2022, 21(6): 2-5. [6] 杨辰. 家属参与早期康复护理对脑卒中后吞咽障碍患者短期预后的影响[J]. 中国保健营养, 2021, 31(31): 158.YANG C. The influence of family members' participation in early rehabilitation nursing on the short-term prognosis of patients with dysphagia after stroke[J]. China Health Care & Nutrition, 2021, 31(31): 158. [7] 刘梦如, 梁发存, 尹艳茹, 等. 脑卒中患者健康素养的潜在剖面分析及与健康行为差异比较[J]. 军事护理, 2023, 40(4): 52-55, 70.LIU M R, LIANG F C, YIN Y R, et al. Potential profile analysis of health literacy of stroke patients and comparison with health behavior[J]. Military Nursing, 2023, 40(4): 52-55, 70. [8] LISIECKA D, KELLY H, JACKSON J. 'This is your golden time. You enjoy it and you've plenty time for crying after': How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis-a qualitative study[J]. Palliat Med, 2020, 34(8): 1097-1107. doi: 10.1177/0269216320932754 [9] 彭羽, 林赟, 周卉, 等. 基于互联网思维主导的健康教育对社区2型糖尿病患者健康素养及自我管理能力的影响[J]. 中国卫生事业管理, 2021, 38(3): 237-240.PENG Y, LIN Y, ZHOU H, et al. Influence of health education based on Internet thinking on health literacy and self-management ability of type 2 diabetes patients in community[J]. Chinese Health Service Management, 2021, 38(3): 237-240. [10] 吴长鸿, 刘斌. 第四届全国脑血管病学术会议[J]. 中华医学信息导报, 1996(6): 4.WU C H, LIU B. The 4th national symposium on cerebrovascular diseases[J]. China Medical News, 1996(6): 4. [11] 郑海农, 林益芳, 蒋爱敏. 新版中国脑血管疾病分类中关于缺血性脑血管病及出血性脑血管病修定的疾病名介绍[J]. 心脑血管病防治, 2018, 18(2): 91.ZHENG H N, LIN Y F, JIANG A M. Introduction to the revised names of ischemic cerebrovascular disease and hemorrhagic cerebrovascular disease in the new China cerebrovascular disease classification[J]. Prevention and Treatment of Cardio-Cerebral-Vascular Disease, 2018, 18(2): 91. [12] 刘纪汝, 李娟, 田芳. 脑卒中病人健康素养量表的编制及信效度检验[J]. 护理研究, 2020, 34(18): 3220-3225.LIU J R, LI J, TIAN F. Development of health literacy scale for stroke patients and its reliability and validity test[J]. Chinese Nursing Research, 2020, 34(18): 3220-3225. [13] 刘婧. 脑卒中吞咽障碍患者照顾者对进食知识与技能需求问卷的研制及应用[D]. 广州: 暨南大学, 2020.LIU J. Development and application of a questionnaire on the needs of caregivers of patients with dysphagia after stroke for eating knowledge and skills[D]. Guangzhou: Jinan University, 2020. [14] 胡方菊. 脑卒中照顾者健康素养与社会支持、生存质量的相关性研究[D]. 扬州: 扬州大学, 2022.HU F J. Correlation between health literacy, social support and quality of life of stroke caregivers[D]. Yangzhou: Yangzhou University, 2022. [15] 李璐璐, 朱明芳, 张驰, 等. 脑卒中吞咽障碍病人安全进食行为发展轨迹及预测因素的纵向研究[J]. 全科护理, 2023, 21(32): 4496-4500.LI L L, ZHU M F, ZHANG C, et al. A longitudinal study on the development track and predictive factors of safe eating behavior in patients with dysphagia after stroke[J]. Chinese General Practice Nursing, 2023, 21(32): 4496-4500. [16] 吴琼, 赵光红, 龚娟, 等. 武汉市大学生电子健康素养与健康生活方式现状及相关性分析[J]. 医学与社会, 2022, 35(8): 78-83.WU Q, ZHAO G H, GONG J, et al. Analysis of the status quo and correlation between electronic health literacy and healthy lifestyle of college students in Wuhan[J]. Medicine and Society, 2022, 35(8): 78-83. [17] KAMATH D Y, BHUVANA K B, DHIRAJ R S, et al. Patient and caregiver reported facilitators of self-care among patients with chronic heart failure: report from a formative qualitative study[J]. Wellcome Open Res, 2020, 5(1): 10. [18] 黄维健, 李小寒. 心理健康素养的影响因素及干预研究进展[J]. 解放军护理杂志, 2022, 39(6): 81-83.HUANG W J, LI X H. Research progress on influencing factors and intervention of mental health literacy[J]. Military Nursing, 2022, 39(6): 81-83. [19] 张艳杰, 杨巧芳, 田焕. 郑州市老年慢性心力衰竭患者及其照护者健康素养对患者自我护理的影响[J]. 中华老年多器官疾病杂志, 2021, 20(7): 508-513.ZHANG Y J, YANG Q F, TIAN H. Influence of health literacy of elderly patients with chronic heart failure and their caregivers on self-care of patients in Zhengzhou[J]. Chinese Journal of Multiple Organ Diseases in the Elderly, 2021, 20(7): 508-513. [20] 潘锋. 我国脑卒中防治事业成就辉煌: 访中国工程院院士、中华预防医学会会长王陇德教授[J]. 中国医药导报, 2019, 16(19): 1-6.PAN F. Brilliant achievements in stroke prevention and treatment in China- interview with professor Wang Longde, academician of China Academy of Engineering and president of Chinese Preventive Medicine Association[J]. China Medical Herald, 2019, 16(19): 1-6. [21] HOWELLS S R, CORNWELL P L, WARD E C, et al. Living with dysphagia in the community: caregivers "do whatever it takes. "[J]. Dysphagia, 2021, 36(1): 108-119. [22] 楼巍敏, 葛黎菁, 李海龙, 等. 脑卒中后吞咽障碍患者焦虑和抑郁情绪影响因素研究[J]. 预防医学, 2019, 31(5): 441-444.LOU W M, GE L J, LI H L, et al. Study on influencing factors of anxiety and depression in patients with dysphagia after stroke[J]. Journal of Preventive Medicine, 2019, 31(5): 441-444. [23] XI X, LI H, WANG L, et al. How demographic and clinical characteristics contribute to the recovery of post-stroke dysphagia?[J]. Medicine (Baltimore), 2021, 100(4): e24477. DOI: 10.1097/MD.0000000000024477. [24] LOBO E H, ABDELRAZEK M, KENSING F, et al. Technology-based support for stroke caregiving: a rapid review of evidence[J]. J Nurs Manag, 2022, 30(8): 3700-3713. -

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