Volume 20 Issue 4
Apr.  2022
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WEI Xue-ping, FAN Xi-zhen, FANG Yuan, LU Meng. Qualitative study of disease experience in patients with end-stage heart failure[J]. Chinese Journal of General Practice, 2022, 20(4): 620-622. doi: 10.16766/j.cnki.issn.1674-4152.002414
Citation: WEI Xue-ping, FAN Xi-zhen, FANG Yuan, LU Meng. Qualitative study of disease experience in patients with end-stage heart failure[J]. Chinese Journal of General Practice, 2022, 20(4): 620-622. doi: 10.16766/j.cnki.issn.1674-4152.002414
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Qualitative study of disease experience in patients with end-stage heart failure

doi: 10.16766/j.cnki.issn.1674-4152.002414

  • Department of Cardiology, the First Affiliated Hospital of USTC, Division of Life Sciences and Medicine, University of Science and Technology of China, Hefei, Anhui 230001, China

Funds:

 1704f0804014

  • Received Date: 2021-10-31
    Available Online: 2022-08-20
    Abstract
  •   Objective  To understand the real disease experience of patients with end-stage heart failure and provide a basis for the development of effective care strategies.  Methods  Using phenomenological research methods, semi structured in-depth interviews were conducted with 18 end-stage heart failure patients hospitalized in the heart failure center of the First Affiliated Hospital of the University of Science and Technology of China from April 2021 to June 2021, and the interview data were analyzed using Colaizzi 7-step analysis.  Results  Analysis of the disease experience of 18 patients with end-stage heart failure revealed that at the symptom level: the experience was deep and dominated by negative experience. At the level of psychological experience: young patients had a heavy psychological burden and were worried about the prognosis, with negative experience predominating, while older patients had good psychological coping and could face the disease openly, with positive experience predominating. At the level of quality of life: all heart failure patients had a negative experience. At the level of family support: young patients lacked family support, had a heavy financial burden, and had more negative experiences, while elderly patients had adequate family support, received more care, and had more positive experiences. At the level of disease perception: there were differences in experience among patients of different ages. Young patients changed from initial negative experience to positive experience, while elderly patients changed from initial positive experience to negative experience.  Conclusion  Patients with end-stage heart failure experience the coexistence of positive and negative disease experiences. All patients have negative experiences at the level of disease perception, and there are differences in experiences at the level of self-management. Patients with end-stage heart failure should have enhanced symptom management to reduce suffering and improve quality of life. Education on disease knowledge should be strengthened to provide early prevention and control disease progression, and effective care strategies should be developed to meet different needs according to the characteristics of different age groups.

     

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