Volume 24 Issue 2
Feb.  2026
Turn off MathJax
Article Contents
XU Wenjin, WANG Qing, DAI Jinghong, MIAO Guiling, GAO Li, YANG Wenfen. A qualitative study of factors influencing pulmonary rehabilitation in patients with interstitial lung disease at home[J]. Chinese Journal of General Practice, 2026, 24(2): 209-213. doi: 10.16766/j.cnki.issn.1674-4152.004362
Citation: XU Wenjin, WANG Qing, DAI Jinghong, MIAO Guiling, GAO Li, YANG Wenfen. A qualitative study of factors influencing pulmonary rehabilitation in patients with interstitial lung disease at home[J]. Chinese Journal of General Practice, 2026, 24(2): 209-213. doi: 10.16766/j.cnki.issn.1674-4152.004362

A qualitative study of factors influencing pulmonary rehabilitation in patients with interstitial lung disease at home

doi: 10.16766/j.cnki.issn.1674-4152.004362
Funds:

 82170076

 LKM2023024

  • Received Date: 2025-08-24
    Available Online: 2026-04-11
  •   Objective  To deeply understand the obstacles and promoting conditions of home-based pulmonary rehabilitation behaviors of patients with interstitial lung disease from the subjective experience of patients, and to provide theoretical support and practical guidance for formulating effective home-based pulmonary rehabilitation plans.  Methods  Based on the theory of planned behavior, through purposeful sampling and descriptive qualitative research, semi-structured interviews were conducted with 15 patients with interstitial lung disease who had home-based pulmonary rehabilitation experience in a tertiary grade A hospital in Nanjing from September to December 2024. Based on literature review, discussion within the research group, and pre-interviews, an interview outline was drafted. The interview process was recorded. MAXQDA 2022 software was used for data management and analysis, and content analysis was adopted to analyze the data.  Results  A total of 3 themes and 10 sub-themes were extracted, namely behavioral attitude factors (perceived rehabilitation benefits, fear of movement, negative rehabilitation expectations, and preference for rehabilitation programs), subjective normative factors (positive emotional feedback to motivate rehabilitation behaviors, the "game" driven by social role pressure and responsibility, and the driving effect of positive attitudes of medical staff), and perceived behavioral control factors (adverse physical symptoms, blocked access to rehabilitation resources, insufficient support from the rehabilitation environment).  Conclusion  The home-based pulmonary rehabilitation behavior of patients with interstitial lung disease is influenced by multiple factors such as behavioral attitude, subjective norms, and perceived behavioral control factors. Medical staff should start from the perspective of patients, comprehensively consider factors such as behavioral attitude, family and social support, and perceived difficulty of rehabilitation, enhance the perceived rehabilitation value of patients with interstitial lung disease, and promote patients to establish a positive behavioral attitude, improve the multi-faceted support system, and reduce the hindering factors for patients to participate in rehabilitation behaviors, providing patients with personalized, comprehensive and dynamically adjusted pulmonary rehabilitation plans.

     

  • loading
  • [1]
    HARARI S, DAVÍ M, BIFFI A, et al. Epidemiology of idiopathic pulmonary fibrosis: a population-based study in primary care[J]. Intern Emerg Med, 2020, 15(3): 437-445. doi: 10.1007/s11739-019-02195-0
    [2]
    陈相, 李耀浙, 傅扬扬, 等. 1990—2019年中国间质性肺疾病和肺结节病的疾病负担分析[J]. 疾病监测, 2023, 38(4): 473-480.

    CHEN X, LI Y Z, FU Y Y, et al. Analysis on disease burden of interstitial lung disease and pulmonary sarcoidosis in China, 1990-2019[J]. Disease Surveillance, 2023, 38(4): 473-480.
    [3]
    ROCHESTER C L, ALISON J A, CARLIN B, et al. Pulmonary rehabilitation for adults with chronic respiratory disease: an official American thoracic society clinical practice guideline[J]. Am J Respir Crit Care Med, 2023, 208(4): e7-e26. doi: 10.1164/rccm.202306-1066ST
    [4]
    中国医师协会呼吸医师分会, 中华医学会呼吸病学分会, 中国康复医学会呼吸康复专业委员会, 等. 中国慢性呼吸道疾病呼吸康复管理指南(2021年)[J]. 中华健康管理学杂志, 2021, 15(6): 521-538.

    Respiratory Physician Branch of Chinese Medical Doctor Association, Respiratory Society of Chinese Medical Association, Respiratory Rehabilitation Committee of Chinese Rehabilitation Medical Association, et al. Guidelines for respiratory rehabilitation management of chronic respiratory diseases in China[J]. Chinese Journal of Health Management, 2021, 15(6): 521-538.
    [5]
    ÇELIK M, PEHLIVAN E. Home-based physiotherapy and rehabilitation in patients with idiopathic pulmonary fibrosis: a review[J]. Thorac Res Pract, 2023, 24(3): 170-176. doi: 10.5152/ThoracResPract.2023.22150
    [6]
    KATAOKA K, NISHIYAMA O, OGURA T, et al. Long-term effect of pulmonary rehabilitation in idiopathic pulmonary fibrosis: a randomised controlled trial[J]. Thorax, 2023, 78(8): 784-791. doi: 10.1136/thorax-2022-219792
    [7]
    HOFFMAN M, MELLERICK C, SYMONS K, et al. Pulmonary rehabilitation for interstitial lung disease: referral and patient experiences[J]. Chron Respir Dis, 2021, 18: 14799731211046022. DOI: 10.1177/14799731211046022.
    [8]
    张灿, 史静华. 计划行为理论在慢性病管理中的应用研究进展[J]. 护理研究, 2023, 37(7): 1208-1212.

    ZHANG C, SHI J H. Research progress on the application of theory of planned behavior in chronic disease management[J]. Chinese Nursing Research, 2023, 37(7): 1208-1212.
    [9]
    TEO J L, ZHENG Z, BIRD S R. Identifying the factors affecting "patient engagement" in exercise rehabilitation[J]. BMC Sports Sci Med Rehabil, 2022, 14(1): 18. DOI: 10.1186/s13102-022-00407-3.
    [10]
    王子涵, 岳雯静, 张向毅, 等. 心脏康复患者运动恐惧形成与消退质性研究的Meta整合[J]. 中国护理管理, 2024, 24(5): 725-730.

    WANG Z H, YUE W J, ZHANG X Y, et al. Formation and extinction of kinesiophobia in patients attending cardiac rehabilitation: a meta-synthesis[J]. Chinese Nursing Management, 2024, 24(5): 725-730.
    [11]
    陈琰琰, 吕畅, 刘晓莉, 等. 影响前交叉韧带重建术后运动恐惧心理的危险因素分析及相关干预措施[J]. 中华全科医学, 2022, 20(12): 2147-2150.

    CHEN Y Y, LYU C, LIU X L, et al. Analysis of risk factors affecting fear of exercise after anterior cruciate ligament reconstruction and related intervention measures[J]. Chinese Journal of General Practice, 2022, 20(12): 2147-2150.
    [12]
    梁发存, 刘梦如, 尹艳茹, 等. 慢性阻塞性肺疾病患者运动恐惧的调查研究[J]. 中华护理杂志, 2023, 58(6): 721-726.

    LIANG F C, LIU M R, YIN Y R, et al. Investigation on the development trajectories of exercise fear in patients with chronic obstructive pulmonary disease[J]. Chinese Journal of Nursing, 2023, 58(6): 721-726.
    [13]
    BORDELEAU M, VINCENOT M, LEFEVRE S, et al. Treatments for kinesiophobia in people with chronic pain: a scoping review[J/OL]. Front Behav Neurosci, 2022, 16: 933483. DOI: 10.3389/fnbeh.2022.933483.
    [14]
    BRUNETTI G, MALOVINI A, MANISCALCO M, et al. Pulmonary rehabilitation in patients with interstitial lung diseases: correlates of success[J/OL]. Respir Med, 2021, 185: 106473. DOI: 10.1016/j.rmed.2021.106473.
    [15]
    石钰洁, 廉慧, 陈茹萱, 等. 纤维化性间质性肺疾病患者的肺康复策略[J]. 中华预防医学杂志, 2024, 58(10): 1501-1507.

    SHI Y J, LIAN H, CHEN R X, et al. Pulmonary rehabilitation in patients with fibrotic interstitial lung disease[J]. Chinese Journal of Preventive Medicine, 2024, 58(10): 1501-1507.
    [16]
    游书秋, 王伟忆, 曾磊, 等. 同伴互助学习对慢性阻塞性肺疾病患者肺康复锻炼的作用[J]. 护理实践与研究, 2022, 19(2): 244-247.

    YOU S Q, WANG W Y, ZENG L, et al. Effect of peer-assisted learning on pulmonary rehabilitation exercise in patients with chronic obstructive pulmonary disease[J]. Nursing Practice and Research, 2022, 19(2): 244-247.
    [17]
    CHAU J P C, LO S H S, BUTT L, et al. Post-stroke experiences and rehabilitation needs of community-dwelling chinese stroke survivors: a qualitative study[J]. Int J Environ Res Public Health, 2022, 19(23): 16345. DOI: 10.3390/ijerph192316345.
    [18]
    刘庆伟, 邵美华, 赵亚玲, 等. 间质性肺疾病患者健康信息获取行为的描述性质性研究[J]. 护理学报, 2021, 28(2): 47-52.

    LIU Q W, SHAO M H, ZHAO Y L, et al. Health information acquisition behavior of patients with interstitial lung disease: a descriptive qualitative study[J]. Journal of Nursing(China), 2021, 28(2): 47-52.
    [19]
    李华芬, 李平东, 曾秋璇, 等. 慢性阻塞性肺疾病患者肺康复教育的最佳证据总结[J]. 护理学杂志, 2022, 37(3): 79-83.

    LI H F, LI P D, ZENG Q X, et al. Evidence summary on pulmonary rehabilitation education in COPD patients[J]. Journal of Nursing Science, 2022, 37(3): 79-83.
    [20]
    CERDÁN-DE-LAS-HERAS J, BALBINO F, LØKKE A, et al. Tele-rehabilitation program in idiopathic pulmonary fibrosis-a single-center randomized trial[J]. Int J Environ Res Public Health, 2021, 18(19): 10016. DOI: 10.3390/ijerph181910016.
    [21]
    COX N S, DAL CORSO S, HANSEN H, et al. Telerehabilitation for chronic respiratory disease[J]. Cochrane Database Syst Rev, 2021, 1(1): CD013040. DOI: 10.1002/14651858.
    [22]
    罗冠祥. 我国肺康复护理开展现状及分析研究[D]. 广州: 广州医科大学, 2022.

    LUO G X. Current status and analysis of the development of pulmonaryrehabilitation nursing in China[D]. Guangzhou: Guangzhou Medical University, 2022.
    [23]
    张明月, 田玉梅, 高娥, 等. 慢性阻塞性肺疾病患者居家肺康复维持现状及影响因素研究[J]. 中华护理杂志, 2024, 59(17): 2077-2083.

    ZHANG M Y, TIAN Y M, GAO E, et al. The study of the current status and influencing factors of the long-term maintenance of home-based pulmonary rehabilitation among COPD patients[J]. Chinese Journal of Nursing, 2024, 59(17): 2077-2083.
    [24]
    翟文爽, 蔡汉炯, 钱佳, 等. 慢性阻塞性肺疾病患者家庭模式肺康复依从性变异曲线研究[J]. 中华全科医学, 2023, 21(7): 1157-1160. doi: 10.16766/j.cnki.issn.1674-4152.003073

    ZHAI W S, CAI H J, QIAN J, et al. Study on the variability curve of family mode pulmonary rehabilitation compliance in patients with chronic obstructive pulmonary disease[J]. Chinese Journal of General Practice, 2023, 21(7): 1157-1160. doi: 10.16766/j.cnki.issn.1674-4152.003073
  • 加载中

Catalog

    通讯作者: 陈斌, bchen63@163.com
    • 1. 

      沈阳化工大学材料科学与工程学院 沈阳 110142

    1. 本站搜索
    2. 百度学术搜索
    3. 万方数据库搜索
    4. CNKI搜索

    Tables(1)

    Article Metrics

    Article views (2) PDF downloads(0) Cited by()
    Proportional views
    Related

    /

    DownLoad:  Full-Size Img  PowerPoint
    Return
    Return